Saturday, December 28, 2024

Hismones 12/23/24

Last week was a flurry of activity, with appointments among urologist 12/16, radiation oncologist 12/17, and surgeon 12/19. We are so grateful that openings appeared in their schedules in such short order. The PSMA PET scan showed the issues to be abnormally complex, especially for 6.4 PSA and 7 Gleason score for the first two tumors found by the biopsy (3+4, 4+3). Statistically, only 30% of us "70'ers" have a more aggressive cancer and only 4% with these biopsy results have activity beyond the prostate. Had cancer been limited to the prostate, surgery could have been one-and-done. Evidence of activity in the right and left iliac lymph nodes pointed toward androgen deprivation therapy and radiation. Surgery would only have successful results if the lymph node reactions were false and they were clear of disease, and access to those could be complicated by scarring and material from previous hernia surgery. So I begin Orgovyx 120mg tomorrow (about $3K my cost for 24 months unless I can find a 90-day supplier). I can look forward to a little fatigue along with hot flashes, mood swings, and bedtime "headaches," along with always keeping an eye out for nearby restrooms. Radiation weekdays for 5-8 weeks will start after about a month of prep protocol that includes a surgical procedure to help isolate the prostate for treatment, which will be in daily 45-second gentle bursts. No tan line! It's far too late to say "long story, short," but the radiation oncologist is optimistic that this cancer will either be cured or managed well. For the rest of my life, PSA tests will reveal whether the cancer is dead, dormant, or active. Treatment anticipates that PSA will drop to 0. It took twice for me to allow the Lord to let me see one, but I'll say that nothing compares to having a strong believing wife alongside during this process. She accompanies me to appointments, takes notes and asks great questions, and prays for and with me as well as accommodating any inconveniences that arise; I'm sure there will be more. My radiation oncologist is Dr. Jerry Barker who grew up in an oncological environment while his dad served M. D. Anderson in Houston. In addition to medical training, he has a degree in Bible from Abilene Christian and a hospice certification. He asked and then led us in prayer at the end of our consultation, including expressing his trust that God will heal. It's a different Christmas season, but I feel remarkably blessed and grateful.

5 comments:

  1. Oh Jim I’m sorry you must go through this journey. I pray for strength and courage. I’m so grateful that you have Tammy to be your greatest support. Thank you for blogging and for your transparency. Love you my friend.
    (Ps) those side affects are real and annoying 🙏🩷🙏

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  2. Jim, I’m so sorry that you are going through this. If anyone can beat it though, it’s definitely you. Keep your faith. Thank God for your wife and the close circle of faithful people around you. Plus, from the sound of it, it sounds like there is a great medical plan. Then God has got the rest. This is just another battle, but we know who’s already won.❤️ Praying for you.

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