Sunday, February 2, 2025
Hismones 2/2/25
"Where could I go but to the forum?" and other resources...
Friends recommended a couple of prostate cancer support forums which I have joined. Here are their links.
Cancer Survivors Network, from the American Cancer Society: https://csn.cancer.org/categories/prostate?gad_source=1&gclid=Cj0KCQiA4-y8BhC3ARIsAHmjC_Gr64HrmXh3UPu9ONkmX9bm0MHyCRSXvLC3fQovdvXZGggMoopm63QaAiCdEALw_wcB
Healing Well, which seems to reflect perhaps deeper research and more technical descriptions: https://www.healingwell.com/community/login.aspx?f=35&
One of the respondents to my posts recommended a Harvard School of Medicine alumnus and prostate cancer specialist's YouTube videos: (sample) https://youtu.be/H3aNfFpInVI?si=tqFl6oCqld4UqiZ5 (Dr. Mark Scholz)
Prostate Cancer Research Institute (non-profit that also has a dedicated helpline): https://pcri.org/
PAN Foundation (financial assistance for treatment): https://www.panfoundation.org My Orgovyx grant is from them.
All my preliminaries are complete. Radiation treatment begins February 20.
I had a cardiology appointment Friday to adjust medications for adequate blood pressure control without the dizziness I've been having. I think we have a better game plan going forward.
I try to remember that it's my health, not the doctors', and I need to be my own best advocate, speaking and/or acting up to express my health needs and desires. All the best!
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